Patient Information

 

 When to call the Pain and Palliative Care team?

  • Difficulty with pain control or other symptoms such as nausea/vomiting, dyspnea, pruritis, constipation, or medication side effects
  • Patient was previously followed by Pain and Palliative Care team
  • New diagnosis of life-limiting or life-threatening disease
  • Patient/Family/Physician in conflict over goal setting
  • Medical decision making discussions with patient/family
  • Patient, family or physician uncertainty regarding prognosis
  • Advanced Cancer
  • Family with limited social supports
  • Complex care coordination and/or home going needs
  • For further referral information, please see: 

 www.capc.org/tools-for-palliative-care-programs/clinical-tools/consult-triggers/pediatric-palliative-care-referral-criteria.pdf

 

What do we do?

Pain management

Sometimes easing a child’s pain is straightforward.  When pain is chronic, or from nerves (“neuropathic”), or resulting from treatment (such as chemotherapy), it can be more difficult to manage.  For some, pain may come from a spiritual or emotional source rather than physical.

Care coordination

Streamlining care for children with chronic illness can be difficult.  The needs of the patient and family are assessed and care is coordinated while keeping palliation as a central part of every treatment plan.  An emphasis is placed on facilitating communication between providers and families to optimize decision-making and coping.

Alleviate symptoms

Constipation, breathlessness, and itching, can be very troubling.  These symptoms, as well as others, may result from medications or disease processes.

Recognize needs

Each child has different needs.  Some children and families need help understanding illness progression with possible outcomes.  Other families want guidance with medical decisions and planning.  At times, quiet, supportive listening is all that is needed. 

Everyone involved

A child’s illness reaches beyond the child.  Siblings, parents, extended family, friends, school, and others can be affected.  Routines and ways of life may be changed.  It is important to keep everyone involved.                                                             

 
The Pediatric Pain and Palliative Care Team sees patients
for in-patient consults, out-patient consult, and home visits (depending on patient situation)

 

Education
  • Medical students and residents
  • Presentations
 Institutional
  •  Physician and department-specific needs
  •  Pain Policy Initiative
  •  Adult Palliative Care Team
  •  JCAHO
Outside HUMC
  • NJ Palliative Care Coalition
  • “New Jersey Pediatric Palliative Care”
  • Hospice Organizations
 


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Translation service provided by Google. HackensackUMC is not responsible for the accuracy of translation or any other aspect of service provided by the GoogleTranslate tool. Users should not make medical decisions without first consulting with their physician.
 


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