The JUDY Center for Down Syndrome

 The JUDY Center for Down Syndrome is a consultative service to families, the community, and other pediatric healthcare professionals at The Joseph M. Sanzari Children’s Hospital at Hackensack University Medical Center. The center is dedicated to the management of the complex health care needs of its patients. Our team of healthcare professionals utilizes a comprehensive range of services to maximize the quality and lives of our patients. We care for individuals with Down syndrome through young adulthood at any age, and partner with the community, schools, and other agencies to promote the best health outcomes. While our focus is on Down syndrome, individuals with other lifelong illnesses can also be helped. 

Services

The initial consultation and admission process generally takes approximately two to three hours and may involve two separate visits. Follow-up visits are usually shorter. Information derived from these visits is provided to the family and the individual’s physicians. The JUDY Center follows the guidelines from the American Academy of Pediatrics and the National Down Syndrome Society. With the consent of the individual or family, our healthcare professionals can meet with other agencies and health professionals to discuss the treatment and care of our mutual clients.

The JUDY Center has ongoing programs open to the community that involve healthcare professionals in Child Life Services, educational sessions for families managing Down syndrome, and outreach to medical professionals.

Some of the services we provide are:

  • Medical services to manage specific problems associated with Down syndrome
  • Individual and family counseling aimed at enhancing coping and adaptation
  • Outpatient parent support groups
  • Referrals to community resources to ensure continuity of care throughout the lifespan
  • Educational services that help families have smooth transitions along the educational pathway
  • Recreation, wellness, and sports services that encompass a spectrum of activities ranging from recreational activities to wellness exercise programs
  • Special services that include speech-language therapy, physical therapy, occupational therapy, audiological enhancements, and others
  • Long-term planning services that provide an advocacy support system to assist families with projected long-term needs

Staff

The core of the team is made up of a receptionist and licensed social worker and a pediatrician. The Judy Center often enlists the help of the myriad of pediatric services offered at the Joseph M. Sanzari Children’s Hospital. 
 

Fred Hirschenfang, M.D., Medical Director

 

Helpful Links

National Down Syndrome Society: 800-221-4602  http://www.ndss.org/

National Down Syndrome Congress: 800-232- NDSC  http://www.ndsccenter.org/

National Association for Down Syndrome: NADS http://www.nads.org/

National Info Center for Children & Youth w/ Disabilities: 800-695-0285

http://www.nichcy.org/

Down Syndrome: Health Issues: http://www.ds-health.com/

The Arc of New Jersey: 732-0246-2525  http://www.arcnj.org/

Division on Developmental Disabilities:  8000-832-9173 

www.state.nj.us/humanservices.ddd

Supplemental Security Disability Insurance: 800-772-1213  http://www.ssa.gov/

New Jersey Early Intervention System: 609-777-7734  www.nj.gov/health

NJ Dept. of Education   www.state.nj.us/education:609-292-4469

Exceptional Parent Resource Guide: 800-E-Parent  http://www.eparent.com/

NJEISFamilies@yahoogroups.com  Early Intervention Parent to Parent Listserve

NJ Division of Vocational Rehabilitation Services:

www.state.nj.us/labor/dvrs/vrsindex.html

Network 21: http://www.dsnetwork21.org/

NJ Council of Developmental Disabilities: www.NJDDC.org

 
Robert C. Garrett on Caucus NJ

Steve Adubato interviews Hackensack University Health Network President and CEO, Robert C. Garrett


 
 
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